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What to do after a Dementia Diagnosis

Legal tasks, benefits, care planning and medical appointments.
Track your progress.
Access detailed step by step guides.

Informed by recommendations from NHS, Alzheimer's Society UK, and Dementia UK

Everything you need,

all in one place

Categorised and prioritised for ease of use, from initial diagnosis through all stages of disease progression

    • Set up lasting power of attorney (health & welfare)

    • Set up lasting power of attorney (property & financial affairs)

    • Notify DVLA of diagnosis

    • Notify vehicle insurance company

    • Update or create a will

    • Inform employer (if working)

    • Review employment protections

    • Apply for Attendance Allowance (if over 65)

    • Apply for Personal Independence Payment (if under 65)

    • Apply for council tax reduction or exemption

    • Apply for Carer's Allowance (for family carers)

    • Register for Blue Badge

    • Review pension and financial planning

    • Check eligibility for Personal Budget

    • Schedule memory clinic follow-up appointment

    • Register main point of contact for health/social care coordination

    • Review current medications with GP

    • Understand prescribed dementia medications

    • Book regular health screenings (eye, dental, hearing tests)

    • Register with pharmacy for repeat prescriptions

    • Consider medication dosette box/delivery service

    • Decide who to tell about the diagnosis

    • Have conversations with family members

    • Explain diagnosis to children/grandchildren (if relevant)

    • Identify family member to be main support person

    • Discuss care wishes with loved ones

    • Set up family communication plan

    • Register family members for carer support

    • Create advance care plan

    • Document wishes for future medical treatment

    • Record care preferences (where to be cared for, by whom)

    • Document end-of-life wishes

    • Register organ donation preferences

    • Create "This Is Me" document for care professionals

    • Plan for long-term care funding

    • Request a needs assessment from local authority

    • Request a carer's assessment (for family carers)

    • Research local dementia support services

    • Find local memory cafés and support groups

    • Register with Admiral Nurses or dementia helpline

    • Explore day centre options

    • Investigate respite care services

    • Assess home safety and make necessary adaptations

    • Install living aids (grab rails, better lighting, etc.)

    • Label cupboards and drawers for easier navigation

    • Set up assistive technology (GPS tracker, medication reminders)

    • Create daily routine visual schedules

    • Simplify home layout to reduce confusion

    • Register for meals on wheels or home help services

    • Maintain social connections and activities

    • Continue hobbies and interests

    • Join dementia-friendly activities

    • Stay physically active (appropriate exercise)

    • Eat a balanced diet

    • Maintain sleep routine

    • Register for befriending services if feeling isolated

  • Research shows 72% of family carers feel stressed and overwhelmed, and 61% say caring has negatively affected their mental health. Without proper support, carer burnout leads to relationship breakdown, health problems, and earlier care home placement for the person with dementia.
    Setting up proper carer support early prevents crisis later - when you're too exhausted to continue, when your own health suffers, or when emergency care placement becomes necessary.

Prevent overwhelm before it starts

More than just a checklist:

Understand the what, why and how.

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Feel in control:

See what your options are, get help when you need it.

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Designed to empower you to find the balance between self serve and professional help to get yourself and your loved ones set up for the future.

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Ready to get started?

Create free account

Easy access on your phone whenever you need it

 Share with family members

Track what you've completed

Get links to official forms and applications

Save important information all in one place

Step 1

Sign up Free

Creating an account let's you save your progress and important information.

Step 2

Review your checklist

See all tasks and steps across 9 categories.

Step 3

Track your progress

Mark tasks and steps complete.
Set reminders for important dates or milestones

FAQ

Common questions

  • Yes. Creating an account and tracking all 100+ tasks is completely free. We'll introduce optional premium features in future (like personalized reminders and regional-specific guidance), but the core checklist and tracking will always be free.

  • You can view the full list of suggested things to do without an account, but to see the detail, all options to complete, track your progress, share with family members, and save your work, you'll need to create a free account.

    It take's less than 30 seconds.

  • Our checklist started life as a collection of discoveries from our own lived experience as family memeber's developed Alzheimer's and we had to scramble to get things in place.

     

    We collated suggestions and recommendations from NHS, Alzheimer's Society UK, and Dementia UK - the most trusted sources for dementia care in the UK, as well as advice and stories from other's who've been through the same experience.

     

    We've synthesized their guidance into an interactive, trackable format. We update our content regularly to reflect the latest guidance. However, it is your own personal responsibility to investigate the nuances of your own personal situation, we cannot possibly cover every single situation.

  • Yes. Once you create an account, you can invite family members to collaborate. This helps everyone stay informed about what's been done and what still needs attention.

  • Yes. We follow UK GDPR requirements for health data. We never share your information with third parties, and you can delete your account and all data at any time. 

  • No. MINDer is an information and planning tool to help you organize post-diagnosis tasks.

    Always follow the advice of your healthcare team for medical decisions.

    For specialist support, refer to the 'Help & support' section on the MINDer app.

  • The checklist helps with immediate post-diagnosis tasks (first 3-6 months). As dementia progresses, needs change - we'll be adding ongoing care planning tools in future. You can continue using your account to track new needs as they arise.

HOW DOES MINDER HELP

Pre-Built Structure

100+ less things to think about

Static PDFs don't help you actually complete tasks - they just list them.

We know that life is busy, research takes time and options are overwhelming.
That's why we reduce the load and give you all the pathways to refer back to at any point, whatever step you want to take first.

Image by Age Cymru
Image by Land O'Lakes, Inc.

Longevity baked in

It's not just about admin

The science has really evolved over the last decade, telling us what we need to protect our brains for the long-haul.

For family carers and those diagnosed, staying healthy and building cognitive reserve is essential. For those diagnosed it means an extended quality of life, for carers and family, it's about protecting yourself for the future.

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OUR MISSION

Helping you make the most of your healthspan

by taking the time & effort out of the admin

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Take it one step at a time

Get the checklist
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BrAIN HEALTH MADE SIMPLE

Dementia is not aging.

As we live longer, our risk increases dramatically.

However, there's not only other conditions that can mimic it's life changing symptoms, but there's young onset risks too.

Promising Breakthroughs

New drugs are coming onto the market that slow the progression of some forms of dementia.

Time Sensitive

In order to treat and manage, it requires an early diagnosis

Complex Diganosis

Because of the multitude of things that can impact our thoughts, diagnosis is complex - you need testing and comprehensive reports.

Free Brain Tips

Low effort, high impact ways to protect your brain for short and the long term, in your inbox.

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